Wednesday, May 14, 2014

You Are Not Alone

Dear Readers,

This summer I will be able to get back to regularly scheduled blogging.

Meanwhile, I have been able only to answer emergency private messages. 

Something struck me about a majority of my answers in these things, and I wanted to say something about it here, because I can write it quickly and give it to the world, even if I am having various difficulties at the moment.  It is this: one of the most important things I can ever say to anyone is that you are not alone, and finding community changed my life.

I want to give you these resources for parents, and also disabled people (largely Autistic, in the case of these resources, because of the audience for this blog) because in them you can find a wealth of like-minded parents and also other Autistic and other disabled adults who are the kind of people who want to reach out to parents in fellowship and share experience, strength and hope.

First, PACLA, which stands for Parenting Autistic Children with Love and Acceptance. This is a Facebook Community group in which you can put up a question and specify if you want it to be answered by only Autistic people for an insider experiential view, or the community at large for the kind of interactional experience or systems understanding or group support that knowing people who have the same things in their lives can bring. From what I see of the people who write to me, most people would love this group and I always send people there privately.

Here, to see what PACLA stands for, is a link to the inaugural magazine they put out: PACLA Magazine, First Issue. I love this magazine. The editors are parents of Autistic kids and Autistic themselves! It is an honor to be part of it. The word 'magazine' doesn't even come anywhere near doing justice to the awesome, and these two claim it is their first time. The only reason I believe them is because I believe them, not because of the evidence. :)

Like what you see? Here is a link to the Facebook Group for PACLA RIGHT HERE. One of the people who started it, Alyssa Hillary, is a fabulous young Autistic activist scholar, a good friend of mine in person. Many parents and autistics are involved, too, in addition to the ones who started it, and the movement is growing.

Next, look at the archives of this blogging collective in which I sometimes participate, and so do many others. It is called We Are Like Your Child and can be found online HERE.. The point of this blog is that we talk about difficult issues within, and how we create workarounds for these things, to make things doable notwithstanding. The disabled people who write here are all people who, like me, care about Autistic and other disabled children and their whole families. All of us are reaching out for a better world. This is another place to find people who will make you notice you are never really alone. They are part of my personal lifeline. May they (we) be the same for you and yours.

Thanks so much for your patience and I will see you in June!

Love,
Ib

9 comments:

  1. "It is this: one of the most important things I can ever say to anyone is that you are not alone, and finding community changed my life"

    I feel this so much. I have stumbled in and out of communities for a very long time looking to find "my people".

    Every single one of them required I change something about myself or hide something in order to "fit", As an autistic person this has been an ongoing theme in my everyday life for such a long time.. It's been exhausting, I was left questioning myself often, I was tired and frustrated often. I felt alone more than I did a part of something.

    However, now I think I have finally found my home, my people, my community... and it has been so amazing. I am so thankful for resources like PACLA and WALYC.

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  2. THIS! Love this... times 1000 to the tenth power - ya... that much!!

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  3. Just found your blog and I am glad it's almost June ;) NO PRESSURE - just, hi, this is great...

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  4. Hahaha. I love you Full Spectrum Mama. I just saw this. What should I write about?

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  5. "It is this: one of the most important things I can ever say to anyone is that you are not alone, and finding community changed my life"

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