tag:blogger.com,1999:blog-1725958813857579465.post6001182227605463181..comments2024-01-18T05:02:46.000-08:00Comments on Tiny Grace Notes (Ask an Autistic): Workarounds Are Our FriendElizabeth J. (Ibby) Gracehttp://www.blogger.com/profile/08330631899371657005noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-1725958813857579465.post-28531454848476686972014-09-19T16:33:33.688-07:002014-09-19T16:33:33.688-07:00Sure! Will you let your readers also know this sit...Sure! Will you let your readers also know this site is a place they can write to ask new questions confidentially? I'm about to get that up and running again.Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-60752627372599732112014-08-30T20:42:47.361-07:002014-08-30T20:42:47.361-07:00May I include a link to this in a website I’m crea...May I include a link to this in a website I’m creating? It’s for parents/anyone who want to know more about autism and is a doorway to AUTISTIC voices/bloggers and neurodiversity friendly parents/professionals. The website is under construction but the facebook page (Autistikids) is up and running - full of links to the same type of posts. I can be reached at autistikids@gmail.com if you have any questions. Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-43094387756150327512014-06-10T22:01:23.706-07:002014-06-10T22:01:23.706-07:00Good stuff. It is interesting to read comment
Dis...<br />Good stuff. It is interesting to read comment<br /><br /><a href="http://www.bestdissertationservices.co.uk/resitdissertation.php" rel="nofollow" title="Dissertation rework services">Dissertation rework services</a><br />Anonymoushttps://www.blogger.com/profile/08626782487356490181noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-37189682204185393052013-12-27T19:40:30.817-08:002013-12-27T19:40:30.817-08:00Pretty sure I am, if I notice! But more than likel...Pretty sure I am, if I notice! But more than likely people say to me they are sorry they are late and I believe them on both counts but I was fine loitering.Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-35592455144446214412013-12-23T20:47:54.011-08:002013-12-23T20:47:54.011-08:00How do you react when others keep you waiting? Ar...How do you react when others keep you waiting? Are you forgiving?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-46195262730652242392013-10-18T14:56:16.701-07:002013-10-18T14:56:16.701-07:00http://nightengalesknd.livejournal.com/
(I think ...http://nightengalesknd.livejournal.com/<br /><br />(I think if you click on "nightngalesknd" above, the hyperlink goes right there)<br /><br />Some of it is locked, because of talking about work, and closets and things. Because I work in health care - mostly although not entirely in autism. I don't know how well you know livejournal, but you can lock entries to be readible only by other specific livejournal users.<br /><br />Some of it is not locked, including Blogging Against Disablism Day stuff, Autism Acceptance Day stuff, and some of my musings and rantings about the intersections between disability and health care. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-54463187318906802802013-10-17T08:33:03.750-07:002013-10-17T08:33:03.750-07:00This story is totally on topic! And what a great i...This story is totally on topic! And what a great idea! I love it when loved ones participate in workarounds. Like Layenie before she turns one the garbage disposal always goes: "Noise!" because I like her voice a lot better... and the cutest thing is, now the little fellas say it with her. I think this is causing me to sort of like it when the garbage disposal is about to happen because my three favorite cuties are chiming in about noise to introduce the whole situation.Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-79762651889968149032013-10-17T08:30:27.545-07:002013-10-17T08:30:27.545-07:00Hah! Genius!Hah! Genius!Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-64481060981035971192013-10-17T08:29:32.834-07:002013-10-17T08:29:32.834-07:00Where are you on livejournal?Where are you on livejournal?Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-47600039916092909372013-10-08T09:31:31.192-07:002013-10-08T09:31:31.192-07:00ok, first of all, i love this so much ..
When I ...ok, first of all, i love this so much .. <br /><br />When I get the chance to be interdependent about it instead of trying to rely on all my own self, I am much more relaxed, and that's OK today. It wasn't always. I wish I had learned this younger. This is different from learned helplessness. I am not helpless; I am getting help for myself in real ways that will really work, and in turn I am helpful to others in other ways that play to my various strengths.<br /><br />secondly, i'm not sure that this really "counts" but it literally JUST happened and i feel like it's at least tangentially related. feel free to tell me i'm way off base :) .. my husband (who is at home) just snapped a photo of the blackened fish he made for dinner and texted it to me (at work) to show me that he'd made one of my favorite things so that i could look forward to having it later. but i was confused. because it's noon. so i wrote back, "i don't get it; did you make it for lunch?"<br /><br />and he said, "no, i just thought that the blackening would create a lot of smoke, so i wanted to make sure to do it before brooke got home."<br /><br />my daughter is terrified of the smoke alarm in our house. anyone setting foot in the kitchen triggers a string of questions to ensure that they are "cooking the right way," and the appearance of smoke causes crippling panic. <br /><br />we've been working on desensitizing her to the noise (by giving her control of recordings on an ipad) but in the meantime, it's something that's really difficult for her (and can ruin an entire night) so the people in her life help her work around it by cooking something particularly smoky when she's not home. <br /><br />the thing is, i think that you're onto something big with interdependence. we all have strengths and we all have challenges. if we all contribute our strenghts and use them to help each other to manage our challenges, what a world we could live in. <br /><br />hope that wasn't too far off the mark, it was just so timely. <br /><br />xoxojesshttps://www.blogger.com/profile/12741476791827870513noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-76134840980623579662013-10-08T05:30:45.597-07:002013-10-08T05:30:45.597-07:00(different room entirely avoids the slap it off an...(different room entirely avoids the slap it off and then return to what I was doing - by getting up and having to move out of the room entirely, it dislodges my brain from whatever I was hyperfocusing on. This is also the only way I can remember to eat, drink, and sleep on time if I'm alone.)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-87091086837238033552013-10-08T05:28:48.305-07:002013-10-08T05:28:48.305-07:00I take advantage of my sensory sensitivities and s...I take advantage of my sensory sensitivities and set a <i>really annoying</i>/borderline painful alarm in a different room entirely. <br /><br />High pitched noises bug the crap out of me. So I set a high-pitched braaah-braaah-braaah type alarm in a different room at a volume and frequency impossible for me to ignore. <br /><br />The other thing I do is pick alarms that are easy to hit 'snooze' on but difficult to shut off entirely. <br /><br />This is the <i>only</i> way I've discovered to avoid having my laundry grow mold in the washing machine. Doesn't work all the time, but works most of the time.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-66776768041528062862013-10-07T11:56:30.377-07:002013-10-07T11:56:30.377-07:00Regarding interaction with, well, almost anything,...Regarding interaction with, well, almost anything, I'm becoming more convinced of the importance of formalizing intent in my head. When I make a ritual of taking a moment to process what I'm about to do, I can resist distraction better and do the task more efficiently.<br /><br />I mean, I know NT people do things better this way, too. It just seems that I need it for more tasks and more often. But knowing that good process is important for everyone, I TELL everyone "Mindfulness is the most important part of any action". :)IsaacsLaughinghttps://www.blogger.com/profile/17134348981149823098noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-81422824808903347702013-10-07T11:49:39.703-07:002013-10-07T11:49:39.703-07:00I have the worst time with alarms, too. I've m...I have the worst time with alarms, too. I've managed with a LOT of effort so far but I'm saving up and thinking about these: http://www.womansday.com/home/10-alarm-clocks-thatll-get-you-out-of-bed-118525IsaacsLaughinghttps://www.blogger.com/profile/17134348981149823098noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-48267020260731574302013-10-03T04:47:21.700-07:002013-10-03T04:47:21.700-07:00Aww. . .
No, I live on Livejournal where I can ha...Aww. . .<br /><br />No, I live on Livejournal where I can have my say in multiple paragraphs that sit still and allow for threaded back-and-forth conversation in the comments. It's largely about disability and health care and the intersections.<br /><br />I haven't even begun to figure out Twitter (or how to compress my thoughts to 140 characters.) I keep trying to read Facebook (like your page and the Thinking Person's Guide to Autism page) but it's too pictures and the entries move around too much and too many clicks to get to the meat of the text and too real-namey.)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-62096280606931044172013-10-02T18:52:26.449-07:002013-10-02T18:52:26.449-07:00Yep, I feel those feels. Alarms comes on, slap it...Yep, I feel those feels. Alarms comes on, slap it off, GAH! I like that one I linked to because it times down the colors and if I remember to look at it then it doesn't bother me, as long as I can remember what comes next, which I sometimes write on my hand, as long as I can do it before I wash my hands, hehe.Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-89066281499347461562013-10-02T18:51:13.203-07:002013-10-02T18:51:13.203-07:00That's a biggie. I think I'll have to writ...That's a biggie. I think I'll have to write a whole nother article on spacing out. But basically with noise-alarms I don't like them so I turn them off without thinking about it because GAH get it out of my ear. So visual alarms are better for me to pay actual attention to, is the short answer. I have Apple stuff all synced to make words pop up at me and tell me stuff, and the voice reads it to me if I don't pay attention to it, but there is a time-delay, so I have a chance for it to sink in first, and I get it two ways. However, the problem still happens, which is why, when things are really really important, my workaround is to get Live Human People on my side.Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-28573785455550886782013-10-02T18:48:12.763-07:002013-10-02T18:48:12.763-07:00Nightengale you so seriously rock. Are you on FB o...Nightengale you so seriously rock. Are you on FB or Twitter?Elizabeth J. (Ibby) Gracehttps://www.blogger.com/profile/08330631899371657005noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-34005201401585331742013-10-02T09:13:30.383-07:002013-10-02T09:13:30.383-07:00Awesome, Ibby! <3 I totally know what you mean ...Awesome, Ibby! <3 I totally know what you mean about not being able to feel the passage of time. It drives me up the wall, sometimes. I use apps like the one you linked to, as well. But Shannon has a point — sometimes when my alarm goes off and I'm in the middle of something, it's really hard to hold in my attention that “when I'm done writing this sentence I need to get up and eat lunch.”Vlad Drăculeahttps://www.blogger.com/profile/03242340650477740456noreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-76458434883861855012013-10-01T19:53:23.523-07:002013-10-01T19:53:23.523-07:00So how do you get past turning off the alarm and f...So how do you get past turning off the alarm and forgetting it ever went off? If my son is really into something, a plane could land on him and he'd just brush it off and get back to the website or whatever. Do you have an alarm that physically kicks you in the butt to DO what the alarm is telling you to do??Shannon Hartnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-69430377880032816622013-10-01T16:56:53.687-07:002013-10-01T16:56:53.687-07:00My main work-around for years has been a computer....My main work-around for years has been a computer. Or occasionally an electric or even manual typewriter. Laptop prefered. In a pinch, a PDA with external keyboard. Anything where I can communicate thoughts to other people in writing without having to grasp a pencil or pen and do any actual. . . writing.<br /><br />I often use "work-around" and "accommodation" interchangably. There are often 2 major approaches to any disability-related situation. One is working on it/through it. Sometimes called therapy. Sometimes called remediation. Sometimes called practice, or structured teaching or a lot of other things.<br /><br />The other is to work around or accommodate it.<br /><br />Sometimes you can do both. For example, you can work on writing skills for the times that writing is pretty much unavoidable, while also using typing so that actual communication of knowledge can happen. You can work on reading skills while also using recorded materials so that actual learning can happen. You can work on oral speech skills while also using AAC for communication.<br /><br />I see so many children where the focus has been on fixing/remediation/therapy without any thought given to accommodations or work-arounds, and so much lost time and missed opportunities. <br /><br />This also gets into medical model/social model stuff. Medical model insists on going "through" things because the person has the problem. Social model argues that getting stuff done is the more important thing, and that there are multiple ways for stuff to be gotten done.<br /><br />So yeah. Work-arounds. Pet topic of mine. Great topic to discuss!<br /><br />--NightengaleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1725958813857579465.post-62155842388289616782013-10-01T15:57:43.989-07:002013-10-01T15:57:43.989-07:00Acting as if a conversation is a piece of music, s...Acting as if a conversation is a piece of music, so I can think of it in terms of its rhythm and various players involved. I call it conversational rhythm.Anonymousnoreply@blogger.com