***Note from Ib: This was commissioned as a general tip sheet for an organization, but I also want to reprint it to here in case it will be of use to any of my readers. It is about the transition of leaving school, and is a bit US-centric in parts. Sorry about that; after I finish converging ideas for Dealing With Family Matters, I'll write an article about transition in general, not centered so much on US law.
Transitions of any kind are difficult for most people, and they’re even more of a challenge for Autistic people and teenagers, and now you are helping your Autistic teenager face Transition with a capital T. This is the big one, and it is complex.
Transitions of any kind are difficult for most people, and they’re even more of a challenge for Autistic people and teenagers, and now you are helping your Autistic teenager face Transition with a capital T. This is the big one, and it is complex.
School Transition Services
Starting from the age of 14, transition planning must start
in schools, by law. Note that in
some states, it must actually be implemented at this time, whereas in other
states the schools have until age 16 to implement the planning that began at
14. Unfortunately, schools do not
always seem to be aware of this, and it can be left to parents to keep
track. (An Autistic person who is
also a Special Education Professor and family advocate and has sadly seen this
all too often is writing this tip sheet.)
So: the first thing to do is make sure the school is on top of the
situation at the correct age.
Post-School Services
One of the things that are of paramount importance is to
find out how, in your area, services are obtained once school is over. In all likelihood there is a gigantic
waiting list and a byzantine system.
Learn the system early and often; sign up for the waiting lists right
now.
Now, What Are Some Specifics To Think About? For living:
§
Where to live
§
Skills for living (practical)
o Self-advocacy
skills
o Cooking
o Communication
using voice, sign, PECS or AAC as necessary
o Transportation
o Budgeting
o Keeping
safe
o Laundry
o Etc.
§
Skills for living (social/emotional/sensory)
o Self-advocacy
skills
o Dealing
with neighbors/roommates/landlord
o Communication
using voice, sign, PECS or AAC as necessary
o Coping
with potential noise pollution or aromatic overload, etc.
o Making
friends and relationships
o Keeping
safe
o Etc.
For working or college:
§
What type of work to do or college to go to
§
Where to work or go to college
§
How to get a job or get into college
§
Supported employment/job coaching/training/other
work/community college/university?
§
Skills for working/school (practical)
o Self-advocacy
skills
o Work-dependent
skills and the ability to learn them
o Work-ethic
and the ability to signal it
o Communication
using voice, sign, PECS or AAC as necessary
o Etc.
§
Skills for working/school (social)
o Self-advocacy
skills
o Knowing
how to be a colleague or student
o Communication
using voice, sign, PECS or AAC as necessary
o Learning
where/how to access the hidden curriculum of a workplace or campus
o Feeling
confident choosing contexts for various activities
o Ability
to recognize and regulate needs
o Keeping
safe
o Etc.
These are just a few of the things to keep in mind for transition
planning in the formal sense, to get you started. It’s not exhaustive and it’s also not mandatory. Plenty of people don’t choose to do all
or any of these things for cultural, personal or other reasons. There are
also informal aspects and arrangements to consider.
In one example, because the employment prospects were so
unpromising and the wait-list for services so long and also unpromising, a
father known to this writer positioned himself on his beautiful historic town’s
Chamber of Commerce, giving himself ample time to make the connections needed
to make sure his son had a well-fitting job opportunity despite being a person
who does not necessarily adore job interviews or such like. As you know, parents do what they must.
You also know that a lot of what you will be helping with in
transition is the emotional and sensory turmoil that comes along with changes,
and these changes are all big and important ones. You may be feeling shaky yourself now, because this is not
the easiest of times, but rest assured: you do not need a tip sheet to know how
to be there to support your teenager as only a parent can. You know how to listen and to love
unconditionally, and that is the most important thing.
Nice list.
ReplyDeleteThere is also a great, downloadable Transition Checklist on Parents Helping Parents website
http://www.php.com/support/adult-children-developmental-disabilities
Thanks Joanna Jaeger, this is an excellent resource!
ReplyDeleteVery informative article post. Really looking forward to read more. Will read on…
ReplyDeleteLabour Attorneys Johannesburg